About

DRUŠTVO ZA KRONIČNO VNETNO ČREVESNO BOLEZEN (DRUŠTVO KVČB) is a non-profit organisation based in Slovenia that provides support, education, and advocacy for people living with chronic inflammatory bowel disease, including Crohn’s disease and ulcerative colitis. The organisation was founded in 2001 and already has more than 1,200 members, who are organised in 11 sections throughout Slovenia for over 20 years. DRUŠTVO KVČB aims to improve the quality of life for people with chronic inflammatory bowel disease in Slovenia by providing support and education to patients, their families, and caregivers, and advocating for better healthcare services through support groups, educational programs, and access to specialised medical care.

DRUŠTVO KVČB also works to fund research into the causes and treatment of chronic inflammatory bowel disease and collaborates with other organisations to promote awareness and improve healthcare outcomes for people living with IBD in Slovenia.

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About

Magyarországi Crohn-Colitises Betegek Egyesülete (MACCBE) is a non-profit organisation based in Hungary that provides support, education, and advocacy for people living with Crohn’s disease and ulcerative colitis, the two main forms of Inflammatory Bowel Disease (IBD). The organisation was founded in 1994 and it became an association in 1997 and in 2003 they obtained our public benefit status and have been providing services to people with IBD for over 25 years.

MACCBE’s mission is to improve the quality of life for people with IBD in Hungary by raising awareness, providing education and support, and advocating for better healthcare services.

About

We are the UK’s leading charity for Crohn’s and Colitis: lifelong conditions affecting over 500,000 people in the UK.

People affected by the conditions look to Crohn’s & Colitis UK to help them navigate the complex health issues they face, and to support them as they live full lives. We bring the Crohn’s and Colitis community together and we are here for everyone. We are campaigners, we are experts, we are supporters, helping lift the voices of people with Crohn’s and Colitis and raise awareness of the conditions.

We provide information, lobby those in power, and work tirelessly to reduce the stigma around the conditions and symptoms and end the taboo. We want to improve the lives of the people who come to us for support, and we fund vital research towards the long-term goal of a world free from Crohn’s and Colitis.

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About

AMICI Italy, the National Association for Inflammatory Bowel Diseases, brings together adults and children suffering from Ulcerative Colitis and Crohn’s Disease, their families, and all those who share the value of health and the bond of social solidarity. It is estimated that in Italy there are about 250,000 people affected by these diseases and 5 million worldwide.  The Association aims to address the socio-health problems posed by these pathologies and avails itself of the advice and collaboration of a committee of professionals dedicated to medical-scientific aspects.

The Association intends to ensure better integration into the patient’s family and social sphere for a disease that is unknown to public opinion. AMICI Onlus is committed to providing support to patients, through free psychological support projects in various Italian treatment centers.  In addition, AMICI Onlus creates campaigns to break the wall of silence around IBD patients, raising awareness at the same time on less recognized issues.

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About

The non-profit organization Crohn-RCUH Association aims to provide general and regular information on all aspects of IBD to patients living in French-Speaking Belgium.  This association has existed since 1985 and is made up of a few volunteer patients assisted by a medical and scientific committee.

Medical information such as therapeutic updates, how various treatments work, vaccines, and more, are handled by the physicians on our medical and scientific committee to be explained to patients either at conferences or through educational articles in the bi-annual magazine that all our members receive.

To help patients cope with their IBD on a daily basis, a team of volunteer patients manage a hotline from Monday to Saturday, as well as 2 Facebook groups. The association also takes steps towards the political world to alleviate legal and social problems that may arise from IBD (for example, with insurance companies !)

The association also provides support and information by bringing together its members and helping them to better cope with the disease (for example, through the PASSE-TOILETTE card)

United We Stand!

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About

Crohn & Colitis NL is the Dutch patient organization for the 90.000 Dutch patients with Crohn’s Disease or Ulcerative Colitis.

Inform

We help you get the right information about living with chronic bowel disease. You get our quarterly magazine Crohniek packed with stories of experience, articles and the latest developments. We keep you well informed through our website and monthly newsletter, social media and information leaflets. And watch our films where people talk about their daily lives with Crohn’s and colitis.

Meet

Meet other people with Crohn’s disease or ulcerative colitis. There are several ways to do this: online in our Facebook groups, by phone, at meetings near you or in your area. Our volunteers who have chronic bowel disease themselves are there for you!

Represent

We are in contact with healthcare providers and (healthcare) insurers, manufacturers and suppliers of medicines, scientists and government and stand up for your interests. We also cooperate with other patient associations and organizations. All kinds of subjects are discussed, such as the shortage of public toilets, the availability of medication, and so on. Together we make a fist and our staff and volunteers ensure that your voice is heard.

Advise

Thanks to our CC panel, we know how Crohn’s disease and ulcerative colitis affect your quality of life. Valuable information, which we use to advise doctors, nurses and researchers on how to improve the quality of care.

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